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TILDA Participant and Public Involvement Working Group

The Irish Health Research Forum defines Participant and Public Involvement (PPI) as a concept and process when individuals meaningfully and actively collaborate in the governance, priority-setting and conduct of research, as well as in summarising, distributing, sharing, and applying its resulting knowledge. At TILDA, we strive to provide opportunities for study participants to have their say on the study. To help achive this, in 2019, we ed invited study participants to join our first PPI Working Group (PPI WG). The PPI WG members come from different backgrounds and provide invaluable insights into study design and how we communicate results to the public. The WG first met in October 2019. At this meeting, we discussed how best to feed-back results from the TILDA Wave 6 health assessment; discussed a new study focusing on diabetes in Irish adults aged 50+; sought and shared opinions on microbiome research in the TILDA study; and considered ideas on what topic reports might be of interest in the near future. The vision of this group is to give a voice to TILDA participants. Now in 2024, we are refreshing the membership of our PPI Working Group. In a first for TILDA, we are also including members of the public who are not participants in the study to help us learn how we can ensure that TILDA has an even greater research and impact than it already does. We sincerely thank all those who generously gieve up their time to be part of the TILDA PPI WG, and look forward to continuing to work together in 2024 and beyond.

If you are a TILDA participant and are interested in joining the TILDA PPI WG, please get in touch at